Living with Chronic Migraine: Speech & Migraine Quotes
I was asked to tell my story about living with chronic migraine at the Miles for Migraine inaugural walk/run in Cleveland. In the speech, I named my support system “My Migraine Lifers.” It’s a migraine quote I think I’ll use going forward. I feel honoured to be a voice for all who live our Migraine Lives and those who fight by our sides.
Thank you, Katie. And thank you, Miles, for Migraine, for putting on this event. It feels so good to be among such migraine fighters. Living with chronic migraine usually leaves me in the dark and in the quiet. Today we are stepping out and putting a face on what we often fight behind closed doors, and I’m so excited to be here.
I think it’s amazing how all of our stories are so different, yet we have some things in common:
I’ve thrown up 3 times on my way to work with a migraine and had my boss tells me he “had a headache too.”
I know I’m not the only one who fights this stigma.
I’ve lost friendships and missed events, both big and small.
I’m not the only one who hopes for a better understanding.
I’ve spent endless money on medications, products, therapies, and anything that promised the smallest amount of relief.
I’m not the only one looking for lifestyle changes and better treatment options.
I’ve been judged by no one more than myself—the guilt, sadness, anxiety, and “what ifs” add up for us all.
But This is why we are here today. To break down the stigma, to help others, and to say thank you to all those who support us.
Living with Chronic Migraine
I have been living with migraine since I was 5. I don’t have many stages of my life that I don’t recall how they affected me. Both my grandmother and my mom suffered from migraine. We had an idea of what it may be but no idea of the difficult journey ahead.
After years of searching for why I felt so awful, Dr Reed was the first doctor to make me feel like I wasn’t crazy. She didn’t promise a cure because there wasn’t one. But she promised to help and join my fight, and her whole office did.
After all these years, I have learned to be thankful daily. I have gained gratitude, and there is nothing I am more grateful for than “My Migraine Lifers.”
I write a blog named My Migraine Life
I tell my stories, share information and bring together a community of My Migraine Lifers. With more than 36 million people suffering from migraine, everyone knows someone in their life who suffers.
My life feels like it is dictated by living with chronic migraines. But I live a happy, blessed life because of all these people.
It’s the group I have gathered over all these years and those who suffer and fight right beside me. It’s my babies, my husband, my parents, my sister and nieces, my friends, my coworkers, my doctors, and the migraine community. Therefore, They are here with me today, and if you look around, they are here with you.
My advocacy hasn’t decreased my chronic migraines or made them better. I would love to tell you something different. It’s a neurological disease… it isn’t very easy. But what it has done is a clearer picture of how it affects my life and others and how we can work together to be happier and healthier.
We all struggle, we all need understanding, and we all need support.
Thank you all for being here today on this really cold morning.
It’s not just about me or my fellow migraine warriors.
It’s about ALL of us.
I appreciate you all for taking steps in YOUR Migraine Life and supporting Miles for Migraine.
What are some of your favorite migraine quotes? How would you describe living with migraine?
Check out My Migraine Life team at Miles for Migraine Events
Cleveland 2020, Cincinnati 2020
Miles for Migraine Cleveland 2019, Cleveland 2018
Miles for Migraine Cincinnati 2019, Cincinnati 2018
Miles for Migraine Phoenix 2019
Oh my goodness! Dr. Reed was my doctor too until I moved away. I know how wonderful she is! She is cutting edge and kindness too! Please tell her I said hello!
Wow, you did an excellent job with your speech – you should be very proud!! x
She moved offices and I haven’t seen her since she left. I miss her also. I agree with her being up to date and kind. It’s a good combination.
Don’t know how I missed this last Month but Kuddos Sarah for a very moving talk on a patient’s perspective, you amaze me, Mimi
Thank you! ❤️
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