Migraine Advocacy

My mission is to relate, educate, empower, and support individuals with migraine, as well as their families and caregivers. I seek to break down stigmas associated with migraine and headache disorders to promote an understanding of the impact that chronic illness can have on a person and family's daily lives.

I share personal stories, resources, coping strategies, and information about fundraising and events in the migraine and pain communities. I work towards advocating for more funding, awareness, and healthcare policies related to migraine management. I have an interest in how migraine and headache disorders are talked about and seen in the media.

Overall, I aim to create a supportive and informative space for those affected by migraine, while also striving to improve the broader understanding of this debilitating condition.

I engage with a wide range of stakeholders. I have had the opportunity to work with many amazing organizations to help improve funding, awareness, research, and community in the migraine world and beyond.  

For further inquiries on how we can work together, please email mymigrainelife@gmail.com.

Remember that advocacy is a long-term effort, often taking time to see significant changes. However, by building a strong and informed advocacy network and consistently pushing for increased resources and awareness, we can make a difference in the lives of people affected by migraine and headache disorders.

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I started as a migraine advocate in 2014 and the first place I started was Migraine and Headache Disorder Awareness Month. Then I found Miles for Migraine. The rest is history...

Migraine Organizations I Support

Miles for Migraine

Team My Migraine Life has FUNDRAISED $10,000 and counting...

Donte

Why I joined up with Miles for Migraine

Director of ACT Now: Training Program for Fellows and Patients

Director of Family Programs

Advocacy Story

Dear Migraine Book 

Mindfulness Series

Cleveland walk/run/relax

Advocate Award, Largest Fundraiser, Largest Team. Patient Perspective 

Cincinnati walk/run/relax

Advocate Award, Largest Fundraiser. Largest Team. Patient Perspective

Phoenix walk/run/relax

Map my Migraine

Additional  Miles for Migraine Resources:

Migraine Support Groups

Education Days

Social Events

Healthline

Healthline Migraine Video: Meet me at the Race

Bezzy Migraine App

Voted Best Migraine Blog

U.S. Pain Foundation

Collaboration with Family Programs

Advocacy training program

Invisible Project: Special Edition Migraine Retreat

Headache on the Hill

Headache on the Hill Ohio Representative 2021, 2022, 2023

Shades for Migraine

Winner of Shades for Migraine funniest photo, pet, and featured in Times Square in New York City.

Migraine at School

Migraine at School Ambassador

CHAMP Coalition for Headache and Migraine Patients

Retreat Migraine

ECHO member- advocacy training program

Contributor

Migraine World Summit

Migraine World Summit affiliate

Migraine Celebrity Interview

Sponsored Khloe Kardashian Interview

WebMD

VIDEO- Going the Extra Mile for Migraine Relief

Lyfebulb

Migraine ambassador

Migraine Advocacy Websites You’ll Find Me On

Prevention

Interview: Though there are a lot of dark days, there is also a lot of joy.

Migraine.Com

Patient advocate

American Migraine Foundation

Migraine Author: Balancing Chronic Migraine and Motherhood

How to Find a Migraine Specialist

Teva Life Effects

Migraine contributor

New Life Outlook

Migraine Contributor

Voyage Ohio

Interview

Sponsored Posts

Amgen

 

Dear Migraine Book

Dear Migraine Book Project with Miles for Migraine

The Dear Migraine Book project has been a labor of love created by the volunteers of Miles for Migraine. Oftentimes, people living with migraine have trouble expressing what it feels like to live with migraine and ...
advocacy training program

Act Now: Fellows and Patients Training Program

I work for the ACT Now fellows and advocacy training program for Miles for Migraine. I'd love to tell you more about it! ACT Now stands for advocacy connection team and connects volunteers in many ways. ...
National Migraine and Headache Awareness Month MHAM

Migraine and Headache Awareness Month MHAM

Migraine and Headache Awareness Month (MHAM) is June. Every year I participate in migraine awareness month, week, and days. I have been honoring National Migraine and Headache Awareness Month since 2015 and you can follow it ...
Headache on the Hill

Headache on the Hill: Alliance for Headache Disorders Advocacy

Headache on the Hill (HOH) is an annual advocacy event organized by the Alliance for Headache Disorders Advocacy (AHDA). Headache on the Hill asks are typically focused on improving awareness about headache disorders, and the need ...
2022 Migraine Life highlights

2022 Migraine Life

2022 Migraine life is another year in the books. I had ups and downs, as always, but got some work done despite new challenges and facing old ones.   2022 My Migraine Life Blog An Integrated ...
Cleveland Miles for Migraine 2022

Cleveland Miles for Migraine 2022 was Fundraising Fun

Cleveland Miles for Migraine 2022 took place on July 16. It was the 5th year and the best weather we have had. That doesn't mean it didn't rain, I'm just saying it was better. Living in ...
5 Strategies for Talking with Your Doctor About Migraine Treatment

5 Strategies for Talking with Your Doctor About Migraine Treatment

This post is sponsored by Amgen. Currently, I only take Aimovig as an anti-CGRP pathway therapy for migraine prevention. Please read the important safety information in this post and talk with your doctor for medical advice. ...
Cleveland 5k raising money for migraine

Cleveland 5k Results 2021: Raising Money for Migraine

The Cleveland 5k, 2-mile walk and relax event took place on July 17, 2021. It was a rainy but fun success! We are raising money for migraine and building local communities each time we gather. All ...
migraine walk Cleveland

Walk Cleveland 2021: Donate and Join Miles for Migraine

Migraine Walk Cleveland 2021 is almost here! I'm so excited! It's my favorite advocacy event of the year! Miles for Migraine will host its fourth annual 2-mile Walk (or Intentional Movement of your choice), 5K Run, and Relax ...
migraine lyfebulb ambassadors patients like me

Migraine Lyfebulb Ambassadors: Connecting Patients Like Me

This post introduces you to migraine Lyfebulb ambassadors and the patients like me that it connects. I am a migraine Lyfebulb ambassador and had the opportunity to attend one of their workshops before COVID-19 in New York ...