Migraine Advocacy

My mission is to relate, educate, empower, and support individuals with migraine and their families and caregivers. I seek to break down stigmas associated with migraine and headache disorders to promote an understanding of the impact that chronic illness can have on a person and family's daily lives.

I share personal stories, resources, coping strategies, and information about fundraising and events in the migraine and pain communities. I work towards advocating for more funding, awareness, and healthcare policies related to migraine management. I have an interest in how migraine and headache disorders are talked about and seen in the media.

Why I Advocate

Overall, I aim to create a supportive and informative space for those affected by migraine while striving to improve the broader understanding of this debilitating condition. I engage with a wide range of stakeholders. I have worked with many amazing organizations to help improve funding, awareness, research, and community in the migraine world and beyond.  

Remember that advocacy is a long-term effort, often taking time to see significant changes. However, by building a strong and informed advocacy network and consistently pushing for increased resources and awareness, we can make a difference in the lives of people affected by migraine and headache disorders.

I started as a migraine advocate in 2014 and the first place I started was Migraine and Headache Disorder Awareness Month. Then I found Miles for Migraine. The rest is history...

Miles for Migraine

Miles for Migraine is a registered Non-Profit with the mission of improving the lives of migraine patients and their families, raising public awareness about headache disorders, and helping find a cure for migraine.

Team My Migraine Life has FUNDRAISED $10,000 and counting...Donte

Why I joined up with Miles for Migraine

Director of ACT Now: Training Program for Fellows and Patients

Director of Family Programs

Advocacy Story

Dear Migraine Book 

Mindfulness Series

Cleveland walk/run/relax

Advocate Award, Largest Fundraiser, Largest Team. Patient Perspective

Cincinnati walk/run/relax

Advocate Award, Largest Fundraiser. Largest Team. Patient Perspective

Phoenix walk/run/relax

Map my Migraine

Additional Resources

Migraine Support Groups

Education Days

Social Events

Healthline

Meet me at the Race

Voted Best Migraine Blog by Healthline

Migraine App Guest Host

U.S. Pain Foundation

Collaboration with Miles for Migraine Family Programs

Pediatric Pain Warrior Camp

Advocacy Training Program Graduate

Invisible Project: Special Edition Migraine Retreat.

The mission of the U.S. Pain Foundation is to empower, educate, connect, and advocate for people living with chronic conditions that cause pain.

Migraine at School

Migraine at School Ambassador

Migraine at School is a national movement to guide families through the complicated journey of migraine. They provide ways to get involved, materials, and resources for parents, students, and educators.

Headache on the Hill

Headache on the Hill Ohio Representative 2021, 2022, 2023

Headache on the Hill is an event held annually by the Alliance for Headache Disorders Advocacy in Washington, D.C. Each year at Headache on the Hill, volunteer advocates come together to personally present Congress with requests, or “asks,” which aim to spotlight legislation affecting the headache community.

Shades for Migraine

Winner of Shades for Migraine funniest photo, pet, and featured in Times Square in New York City.

Shades for Migraine is a social media awareness campaign by the Association of Migraine Disorders as a way to create buzz around a disease that affects more than 1 billion people worldwide.

(CHAMP) Coalition for Headache and Migraine Patients

Retreat Migraine

ECHO member- advocacy training program

Contributor

CHAMP brings together the most influential patient advocacy organizations and leaders in the area of migraine, cluster, and headache diseases.

Migraine World Summit

Migraine World Summit affiliate

Migraine World Summit's mission is to reduce the global burden of migraine. Learn from dozens of world-leading migraine experts, doctors, and specialists from around the world to help answer the most difficult questions for those with migraine.

WebMD

VIDEO- Going the Extra Mile for Migraine Relief

Prevention

Interview: Though there are a lot of dark days, there is also a lot of joy.

This story is part of Prevention’s We Are Not Invisible project, a series of personal and informative stories that shed light on those with Invisible Disabilities in honor of Invisible Disabilities Week 2022.

Migraine.Com

Community Health Leader

Migraine.com empowers patients and caregivers to take control of migraine disease by providing a platform to learn, educate, and connect with peers and healthcare professionals.

American Migraine Foundation

Migraine Author: Balancing Chronic Migraine and Motherhood

American Migraine Foundation is a nonprofit organization focused on promoting research, advocacy, and awareness for the 39 million Americans living with migraine.

Teva Life Effects

Patient contributor

The Tea Life Effects series are stories written by patients and caregivers.

New Life Outlook

Freelance Contributor

NewLifeOutlook's supportive and compassionate communities prove that's not true – you're not alone.

Voyage Ohio

Interview

Voyage Ohio's mission is to promote mom and pops, artists, creatives, makers and small businesses by providing a platform for these hidden gems to tell their stories in their own words.

Lyfebulb

Migraine ambassador

Lyfebulb is a patient engagement platform. Their mission is to reduce the burden of living with chronic disease through the power of the patient.

Sponsored Posts

Amgen

How I navigate having a social life while living with migraine

5 Strategies for Talking with Your Doctor About Migraine Treatment

Living with Migraine after COVID-19 Stay Home Orders Lift

5 Ways My Migraine Life Has Changed during COVID-19

Migraine in the Workplace

How Traveling was Different this Year

How a Preventative Treatment for Migraine has Worked for Me

Going Back to School as a Teacher Living with Migraine

Nurtec ODT

Khloe Kardashian Interview-Khloe Kardashian is a paid spokesperson for Nurtec. Khloe takes Nurtec ODT as her migraine medication.

 

Related Blogs

Dear Migraine Book

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Act Now: Fellows and Patients Training Program

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Headache on the Hill

Headache on the Hill: Alliance for Headache Disorders Advocacy

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