Finding Quality Care while having an illness

This week I had a neurologist appointment.  Surprise, surprise.  I feel like I’m always there.  I have been going to the same place for over a decade and just love them.  They have saved me during holidays, major events and supported me through a tough and arduous journey with my migraines.  As I sat and had a nice chat with my nurse, I told her how much I am learning from blogging and being part of a community that is similar to me in ways that others do not relate.  She was so happy to hear about the involvement I have and said that she enjoys working with patients like me who take responsibility for their own health.  While I am finding what works for me or ideas I think may help, I can report it to her and she can more effectively treat me.  As I was driving home I thought about how many times I prayed that the medication I was trying was going to miraculously cure me.  About how many medications I have read the side effects yet never connected the dots that so many meds were making me sicker.  How many times I received advice that I just didn’t follow through with.   It made me so happy that I am facing my disease head on with knowledge, endless experience, and now a lot more clarity.  I don’t rely just on pills to help me.  Although, I solely rely on them as rescue meds and am pretty positive I will always need them.  I respect them more for the harm and help that they can provide my brain and I take them thoughtfully.  I live a more preventative life naturally and am cautious with triggers that have burned me many times in the past.  I had a horrible experience with my first neurologist in which I was prescribed a medication that did a ton of harm to my body and psychologically made me mistrust the medical community.  Once I found the right doctor for me, my life changed!  Did my migraines go away, of course not.  Have I, in the last 30 years, had an extent of pain free days, nope!  But the compassion and determination to help me and not give up on my condition is what makes me smile when I leave my neurologist’s office.  I have talked to many people who rely on the ER to rescue them from unending pain.  I have never needed to go to the emergency room for my migraines because my neurologist and nurse have provided me with what I need and if not, make me a priority to see me and help.  I don’t believe the ER is always knowledgeable enough to treat the complexity of Migraine and would be fearful to go.  I was admitted when I was pregnant for the flu and severe dehydration.  While knowing that I was highly sensitive and allergic to medications, the ER gave me a dose of medication that I had a reaction to which put both myself and my baby at risk.  The lack of concern that the nurse showed towards me was heartbreaking to say the least.  Receiving quality medical care from my office knowing that they understand migraines and my medical history is relief that I can’t put into words.  Doctors and nurses are people that we all respect and expect to do miracles when in fact they are human like we are. Patients should not be seeing ER or general practioners if they are not trained to treat the wide range of migraine patients.  I think the words “migraine” and “headache” are seen as general statements about health when in fact they are very specific disorders.  I believe too many that suffer are seeing the wrong professionals or the wrong professionals are treating complex patients.  Finding the right care for yourself is crucial.  I am not sure where I would be today if I had not found the doctor’s office that is fit for me.  With that said, I’d like to add that nurses should be way more respected, as should teachers, for doing some of the toughest jobs yet getting little credit for the lives they change.  My nurse that I work with allows me to think that I am not alone and that I am not crazy with my battle.  The mental part of being in extended amounts of pain is eased as she gives me ways to treat the physical pain.  Doctor’s offices should bring hope.  Hope of not a miracle pill that will cure all, but hope of understanding, compassion and never ending quality care.

Sign up for our newsletter

Sarah Rathsack

I tell stories of My Migraine Life. Living life through Migraine consists of advocacy, treatment, prevention, and searching for health and happiness in a positive honest way. My kids, husband, dog, family and friends motivate me to make a difference in the Migraine World.

You Might Also Like:

Medicine vs Migraine Diet, My quest to find a balance

I saw my migraine surgeon and after speaking with him, I decided to reconsider another surgery.  I find myself, again, desperate enough to consider it with hopes of long lasting lowered intensity, duration, and frequency of my migraines.  While I’m considering this, I am also trying to be more well rounded in my ideas of…
Read More
spoons chronic illness theory explained

What is the Spoonie Theory or the Spoon Theory?

I’ve heard of the spoonie theory or the spoon theory. But what is it? Actually, it’s the spoon theory and spoonies are people with chronic illnesses. I’ve learned what it means when people refer to spoons and chronic illness and apply it in my life with migraine. What is the Spoon Theory?  The spoon theory…
Read More
migraine and headache awareness month 2019

National Migraine Awareness Month 2019

Migraine Awareness Month 2019 begins today.  Welcome, June!  During this month, I will be posting frequently about migraine and headache diseases.  Along with the ideas set forth by groups I collaborate with, I will be posting my own thoughts, fundraising/walking/and speaking at Miles for Migraine, and providing GIVEAWAYS!!!!!! Migraine and Headache Awareness Month 2019 Theme…
Read More


  1. Debbie Rathsack on October 22, 2014 at 9:20 pm

    Well said Sarah with great observations!

  2. Wendy Schaetzke on November 2, 2014 at 4:09 am

    Just getting caught up on my reading. Love this entry Sarah!!!

Leave a Comment

This site uses Akismet to reduce spam. Learn how your comment data is processed.

Weighted Blanket

Allay Lamp- Green Light Therapy

Axon Optics- Light sensitivity glasses

Headache Hat- Ice Hat

Organic Aromas

Himilayan Salt Lamp

Heat Wrap

Migraine Magick


Med Manager



Norb Light Bulb

Kold Tec

Be Naturals Organics

Bed of Nails