Why is Healthcare so Unaffordable?

Why is Healthcare so Unaffordable_

Why is Healthcare so Unaffordable_

This week I was notified that my copay for an already expensive medication was raised.  I was supposed to receive the treatment and was not properly notified of the change so my much needed appointment was postponed for 2 weeks. I spent the day on the phone with my specialty pharmacy.  I  was sobbing as I gave her my credit card information.  The woman on the phone’s voice actually started shaking too because she felt so bad that I required a medication that has such an obviously outrageous cost. The price of ONE medication is more than I make in a YEAR!  I basically work 3 full time jobs.  I’m a full time mom, a teacher and a blogger/freelance writer.  All of these take long strenuous hours and get paid very little for the time and passion I put behind them.

My last conversation with my neurologist was her saying “If you don’t take more medication you aren’t going to get better.”  I wanted to say to her, “If I took all the medication you want me on, my Migraine may go away but the side effects would make me a different person and I’d need to sell my house to afford the 5 other meds I require.”

The costs of medications are insane and the question remains for not only me, but everyone: WHY IS IT NOT AFFORDABLE TO EVERYONE?

Missing my appointment caused me to cry all day!  The crying spiraled into a migraine cycle that I now am existing in and quite possibly can suffer with for the next 2 weeks.  With a neurological disease, everyone is so different.  Medication should be affordable to all with options to receive treatment that works for each individual.  I can’t tell you the amount of money that I’ve spent on meds I’ve filled and ended up throwing away.

When there is no cure, how are any of us supposed to figure out how to feel better if we can’t afford it?  We can’t work enough hours to pay for it and the lack of proper medication makes us miss work or be unable to work because of it.  The result of missing my appointment has and will continue to make me miss days, if not weeks, of my life suffering A LOT.  I’m talking about a level of pain that I hope many people will never understand. This requires me to take more medication (which in reality doesn’t fix it), which also costs a lot, struggling through side effects and other issues.

HOW CAN WE GET BETTER IF WE CAN’T OBTAIN OR AFFORD PROPER TREATEMENT FOR EACH INDIVIDUAL PERSON?

Yet again, I spent all my free time this week on the phone!  Check out how this isn’t the first time….I spend my free time talking to insurance, pharmacies and doctor’s offices

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*Note: I typically don’t speak about the specific medication I am on because I don’t want it to be confused by advice.  Everyone’s results, side effects and costs are all different.  We all need to do what we think is right for our journey.

mymigrainelife

I tell stories of My Migraine Life. I'm a mom, wife, teacher, and chronic migraine sufferer. I tell my stories and advocate in my life searching for health in a positive honest way.
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5 Comments

  1. Miriam @butstillbreathing on March 17, 2018 at 5:45 pm

    Sarah – I am so sorry that you are going through this! The stress of having to deal with a pharmaceutical disaster and insurance mishaps certainly doesn’t help something like chronic migraine disease. Trust me I get it. I am a transplant patient in chronic rejection and the doctors have expended all other treatments except one. However, my insurance company feels that this treatment is too expensive, so they denied this lifesaving treatment. Insurance companies and pharmaceutical companies do not care about people. They care about money. Unfortunately, that is the system at the moment. The only thing we can try to do is advocate as hard as we can for ourselves and hope that something we do works. Thank you for writing such an honest expression of your feelings and thoughts. I hope that something changes so that you can receive some relief soon!



  2. achysmile on March 17, 2018 at 6:24 pm

    My heart goes out to you! I know it wont fix anything, but I am sending you gentle hugs. I hope things get better for you financially. I just applied for disability. I understand your pain!



  3. mymigrainelife on March 17, 2018 at 7:07 pm

    Thank you! I agree with advocating. We can’t live with medication yet we can’t live without it!



  4. mymigrainelife on March 17, 2018 at 7:08 pm

    I just wish the cost of medication didn’t dictate my treatment plan.



  5. achysmile on March 17, 2018 at 7:10 pm

    I know what you mean. I am on medicaid, BUT they don’t always approve of the more beneficial treatments. Or I’m left waiting forever for approvals.



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